Patients & Advocates

We Put Patients First

At Eidos, we work to establish and build relationships within the transthyretin amyloidosis (ATTR) community. We are committed to approaching these relationships with honesty, integrity and transparency.

We respect the independence of patient organizations and the unique perspective of every advocate, patient and family member.

We actively seek to include the perspective of patients, families and advocates in the drug development process by listening and learning from them.

Patient Stories

Phil’s Story

Art’s Story

Len’s Story

Ivan’s Story

Resources

Amyloidosis Specific

Amyloidosis Alliance
Worldwide alliance of amyloidosis patient organizations & support groups looking to make contributions to the quality of care of amyloidosis patients
Amyloidosis Foundation
Patient advocacy organization committed to supporting patients and increasing awareness of all types of systemic amyloidosis
Amyloidosis Research Consortium
Global patient advocacy organization working to accelerate the development and access to new and innovative treatments for amyloidosis
Amyloidosis Support Groups
Patient advocacy organization dedicated to providing peer group support to patients, caregivers, families and friends of those touched by amyloidosis
Mackenzie’s Mission
Patient advocacy organization focused on raising disease awareness and supporting amyloidosis medical research

Rare Disease

EveryLife Foundation
Patient advocacy organization dedicated to advancing the development of treatment and diagnostic opportunities for rare disease patients through science-driven public policy
Global Genes
Patient advocacy organization focused on connecting, empowering and inspiring the rare disease community
National Organization for Rare Disorders (NORD)
Patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them

Clinical Trial

ClinicalTrials.gov
Link to a list of transthyretin amyloidosis trials included in the U.S. National Library of Medicine’s database of privately and publicly funded clinical studies conducted around the world

Access Policy

Currently, Eidos Therapeutics does not have a formal expanded access program in place and considers requests for expanded access only on a case-by-case basis. Inquiries regarding expanded access may be sent to ExpandedAccess@eidostx.com.

Patients seeking to enroll in clinical studies should visit www.clinicaltrials.gov for information regarding ongoing studies and current study site locations.